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The blog is about sharing my interests and hobbies and getting
to know me. as well as sharing my experiences with advocating.
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Oct 18, 2023
RARESummit23
I was invited to attend the RAREsummit 2023 and talk about the long lasting impact of having a rare disease. Despite not being able to...
Jun 11, 2023
My Life, My Genetics - Genetic Inheritance
I was a part of Rare Youth Revolution's Genetics Project. I worked alongside Rare Youth Revolution to talk about different topics...
Mar 27, 2022
7 Stages of Managing a Long Term Illness
These stages relate to my own experiences of being diagnosed, processing and living with Lupus. I believe it can be used as a guide for...
Jan 3, 2020
Fave Song of 2019
Lost in the fire - Gesaffelstien ft. The Weeknd Heartless - The Weeknd Con altura - RosalÃa On My Way - Prettymuch Nowhere to Run - Ryan...
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