ADVOCACY

The blog is about sharing my interests and hobbies and getting
to know me. as well as sharing my experiences with advocating.

7 Tips on Being an Effective Carer

Being in a caring profession as a social worker and caring for a child/young person with a long term illness as a carer are two very...

RARESummit23

I was invited to attend the RAREsummit 2023 and talk about the long lasting impact of having a rare disease. Despite not being able to...

My Life, My Genetics - Genetic Inheritance

I was a part of Rare Youth Revolution's Genetics Project. I worked alongside Rare Youth Revolution to talk about different topics...

RARETalks

I was interviewed by RARE Youth Revolution about what it's like living with Lupus. It was a great opportunity to talk about Lupus with...

7 Stages of Managing a Long Term Illness

These stages relate to my own experiences of being diagnosed, processing and living with Lupus. I believe it can be used as a guide for...

World Young Rheumatic Diseases Day

Find out more about more about a new World Wide event to raise awareness awareness about the lives of young people living with rheumatic...

McPin YPAG

In December I became a member of the McPin Foundation Young People Advisory Group (YPAG). This is an organisation that through research...

Decade of Lupus

The following article was published in Lupus Uk's News & Views magazine,Winter 2018 edition. I've posted it on my website because this...

Cochrane Conference Edinburgh 2018

In September I was invited to the Cochrane Conference in Edinburgh, Scotland by the lovely Dr Erin Walker ( Patient Insight and...

RARE Revolution Magazine Article

I recently had the opportunity to write an article for the RARE Revolution Magazine. Click below to find out more. LINK TO FULL ARTICLE...