Jan 24ADVOCACYAbout LilianI’ve always been an empathetic person and someone who has enjoyed helping others. This is why the career pathway I chose as a young adult...
Oct 30, 2023ADVOCACY7 Tips on Being an Effective CarerBeing in a caring profession as a social worker and caring for a child/young person with a long term illness as a carer are two very...
Oct 18, 2023ADVOCACYRARESummit23I was invited to attend the RAREsummit 2023 and talk about the long lasting impact of having a rare disease. Despite not being able to...
Jun 11, 2023KATTYMy Life, My Genetics - Genetic Inheritance I was a part of Rare Youth Revolution's Genetics Project. I worked alongside Rare Youth Revolution to talk about different topics...
Feb 15, 2023ADVOCACYRARETalksI was interviewed by RARE Youth Revolution about what it's like living with Lupus. It was a great opportunity to talk about Lupus with...
Mar 27, 2022ADVOCACY7 Stages of Managing a Long Term IllnessThese stages relate to my own experiences of being diagnosed, processing and living with Lupus. I believe it can be used as a guide for...
Feb 2, 2022ESCAPISMGetting Creative Recently I have rekindled my love for painting and drawing. It began in 2020 during quarantine when me and my family started colouring in...